Well, after a week-long stay in the hospital, we are finally settling in at home again. It's been a very busy couple of days and I'm just now getting a chance to write.
As you may already know, Wednesday Caleb had the NG tube inserted to help try to relieve the bowel obstruction. He pulled the tube out after about 4 hours. We had it reinserted on Thursday morning. He kept it in most of the day, but pulled it back out again after dinner. Since we were still waiting for a "poonami" to happen, it was reinserted Friday morning. This time he said that he would keep it in until they were ready to pull it out. We were ready to try just about anything non-surgical to help get that blockage moving. Caleb had an appointment with the hospital's massage therapist & she performed a "poop massage," which is basically an intestinal massage designed to help move stuff through the intestines. Caleb says, "This is fun and important, too.!" Such wisdom from such a small boy.
He was such a trooper through the entire ordeal. By late Friday night, his little bottom was blistered and bleeding so much he would scream every time we had to change him. We actually had to start giving him morphine for the pain on his bottom more often than the pain in his head!
He had a horrible night Friday night, because the tube was still inserted & they were still pushing meds into him to make him go even more. Even after over 2 litres of the medicine, the blockage still had not moved very much. He was awake every hour to be changed to help his bottom. They even made some special ointment called "ICU Butt Paste" to put on him. It was so hard to see him in so much pain and know we had to keep going.
Saturday morning he decided he was done with the tube & pulled it out again. We had an x-ray done to see if the blockage had moved any -- only a tad. We did discover that things were getting around the blockage. (I won't go into details other than to say that the doctors have been able to confirm that Jell-o has no blood in it.)
Saturday morning was also the "BIG DAY" with the fight against Darth Vader. We had the following family members come in to witness the fight and spend some time with Caleb: Grandma Kitty, Grandpop Andy, Uncle Andy, Aunt Deanna, cousin Jordyn, Aunt Darlene, G-ma Kay, Pawpaw Ron, Uncle Bernie, Aunt Jennifer, cousin Emmanuel, & Uncle David. The room was packed with family. We had so many people taking pictures & video of us that we felt like we were surrounded by the paparazzi! I actually heard someone ask who made the shirt I was wearing.
We went to the family lounge shortly after 10 a.m. The Star Wars gang arrived around 10:30 a.m. Caleb was so excited. He'd been practicing from his bed for 2 days prior. After introductions & instructions, the fight began. During the match we began chanting, "Team Caleb, Team Caleb!" Even the stormtroopers were chanting with us. Caleb fought valiantly and Vader was no match for him. Caleb prevailed!! When the fight was over, Caleb was able to take pictures with everyone. They presented him with a medal for besting Darth Vader, a t-shirt, several autographed trading cards in a collector binder, a stuffed Yoda (that was bigger than the stuffed Vader he'd received earlier that morning [thanks, Aunt Karen]), a certificate making him an honorary Stormtrooper & some other items.
I'm still working on editing the video so it's short enough to post on YouTube. As soon as it's complete, I'll put it in a separate post, but I've at least posted a group picture below for now.
He was exhausted by the time we left & went back to the room. While he was napping, we got word that we were being discharged! So, we packed everything up so that we could leave as soon as we spoke to the doctors. The entire family entourage helped pack things up & followed us home. We had a wonderful evening visiting with family & Caleb held out as long as he could.
Aunt Dar, Uncle Bernie, Aunt Jennifer & Emmanuel are staying with us for a few days to help out & we are so very thankful to have them here.
I have so much more to write, but don't want to take away from Saturday's fun, so I'll write the rest up in another post.
Love, hugs & kisses to all from us.
Angel
P.S. Don't forget to leave a comment. Please remember to put your name & a location if possible. Caleb has been enjoying hearing how many people all over the world are praying for him.
Im sooo happy that it moved a little... A little is better than not moving at all and im excited to hear things are moving around it... I dont know yall but I check on Caleb EVERYDAY!!! Just let him know that im praying for my lil buddy and keep up the great work and that he has my heart!!!Love the picture and sooooo excited he had a great turn out Saturday..
ReplyDeleteThanks for the update Angel
Will keep checking everyday on my lil buddy!!!
Jade Guillot
Baton Rouge, Louisiana
awww he must of love love loved it!!!!! =)
ReplyDeleteWay to beat Darth Vadar, Caleb!!! I will continue my prayers for you guys.
ReplyDeleteKimberly Runyon Buratt
Prairieville, LA
I've been praying the blockage would move so our little guy could feel better. My heart goes out to him, he's been through SO MUCH!
ReplyDeleteI'm so glad that you've got the support of family and friends through this ordeal. It's times like this when you realize just how loved you are.
I'm so glad that Caleb had the opportunity to satisfy one of his wishes by beating Darth Vader! What a wonderful organization to help children.
Always in my daily thoughts and prayers.
Lots of Love,
Misty
Darth Vader, says, Who is this Caleb that I cannot defeat. I must retreat, Am I getting tooo old for this. CALEB IS THE BIGGEST CHALLENGER I HAVE HAD TO FACE AND I LOST, I CANNOT OVERCOME PRAYER AND THE HOLY SPIRIT, THAT IS ON HIS SIDE.
ReplyDeleteI love you Caleb and will always continue to pray for you, lots of Hugs and Kisses.
CALEB GMA LOVES YOU SO MUCH. YOU ARE MY LITTLE WARRIOR AND SUCH A BRAVE ONE TOO. LOVE GMA AND PAPA
ReplyDeleteGeaux Caleb Geaux Caleb! I am soooo glad you kicked Darth Vader's butt! :) You are such an awesome little fighter! :)
ReplyDeleteNikki (Chas's Cousin)
St. Amant
I knew you could beat Darth Vader! He was no match for you I'm sure. Thinking about all of you and praying!
ReplyDeleteLove to you!!
Kristi (Little Elm)
Just read the blog. It was me who asked about "who designed your shirt? " b/c that's what paparezzi does at big events...lol
ReplyDeleteIt was great to witness the fight.
Aunt Darl
I am so attached to this little guy. He is sleeping soundly in the bed next to me, and how do I wind down for the evening?
ReplyDeleteI look at his pictures & read his blog updates.
Aunt Dark,
Way to go Team Caleb! So very proud of you little man. You are such a brave boy. Many prayers and hugs from my family to yours.
ReplyDeleteChristie Miller
MAY THE FORCE BE WITH YOU! GO TEAM CALEB! Loved the picture, what a special family you have been blessed with. Praying for your recovery in Jesus name. Love and hugs from Laplace, Louisiana.
ReplyDeleteGena
Awesome job defeating Darth Vader, Caleb! I have just recently found your blog through a friend of mine on Facebook. I haven't been able to stop reading...my heart goes out to you and your family. You have been through so much! My thoughts and prayers are with you. Lots of love coming your way from Alma, Arkansas,
ReplyDeleteThe McCalls
It seems defeating Darth has done more for him than any drug could. Do
ReplyDeleteAunt Dar
Praying for Jesus to keep his loving arms wrapped around you Caleb. Many heartfelt prayers & love is being sent to you because you are such a special boy!! God Bless you!!
ReplyDeleteMy daughter Misty works with your Grandma Kitty. She just told me our shirts are in. I can't wait to wear mine.
Deanie Templet
Saint Amant, Louisiana
Caleb
ReplyDeleteI just read your story on the Little Elm Website and I read where the baseball teams will be wearing gold for you this week, but I play softball on Monday Nights and I plan to wear gold for you tonight during our opening game. I pray everything gets better you, and keep fighting the good fight.
Randy Porter
Little Elm, Tx
There are many prayers sent you way.
ReplyDeletehttp://www.littleelm.org/
Prayers from Little Elm, Texas!
ReplyDeleteCaleb, you are such an awesome little dude!! I have been praying so hard for you!! Your such an inspiration to kids and grown ups everywhere!! Stay strong!!
ReplyDeleteCyndi Bishline
Dallas Texas