A Fun & Active Weekend

Wow! Where to start? So, Friday was a pretty good day (see previous post for details).  Saturday morning Caleb woke up in a good mood. Still not feeling really well, but at least in a good mood. His football team (Lobo Blue 5/6) was scheduled to play their championship game at 9:00am. He wasn't quite up to going to even watch, so we cheered them on from home.

Rejoicing in the small things.

It's now been 19 days since we received the first diagnosis. There have been some good days and there have been some not-so-good days.  Today was a good day, which is definitely something to rejoice about!

An Unexpected Day at Clinic

We got up this morning at 4:30am, which is pretty normal for radiation day. Thursday is also our day at the oncology clinic to meet with the oncologist. We administered medication; packed breakfast & lunch for Caleb (and another round of meds); lunch for Caden; got dressed; loaded everyone into the van; & dropped Caden off at a friend's so he could still make pre-school today. Then, Richard, Caleb & I headed downtown for treatment.

O, Rest, Where Art Thou?

I may ramble a bit on this one, so please bear with me.

It's almost 11:30pm and I've been awake since 4:30am. I'm still wide awake while the rest of the house sleeps. I'm struggling with a bunch of different negative emotions right now -- anger, helplessness, uncertainty, exhaustion. 

The Same, but not...

Sunday is normally an easy day for us. We get up early to get ready for church and arrive there around 8:30 a.m.  Since Richard is head usher & I sing on the worship team, one or the other of us is usually serving on any given Sunday. We drop the kids off in their classrooms & enjoy the service. When it's over, we leave between noon & 1pm to go home.

The Newest Member of Our Family

We'd like to introduce everyone to the newest member of the Huffines Family:

One Day at a Time

We are now on Day 3 of radiation treatment. It does seem to be getting a little easier. At least he didn't wake up yelling, "I'm hungry. Give me something to eat NOW!" He just asked if he could have donuts after treatment. He's finally starting to understand that he can't eat until his treatment is over.  He's also been much more alert the past couple of days.

The Journey Begins

We started noticing changes in Caleb in August 2010. It was a bunch of little things that didn't seem to go together. Everything we noticed was easily blown off as part of something else.

FB Posts 10.20.10

Wednesday, October 20, 2010 9:38 AM
Day 1 of our 6 weeks of treatment began this morning. He woke up (on his own) at 3:15 am saying he was hungry. Of course, we couldn't give him anything until after treatment was over, so he wasn't very happy with us. All went well. He ate 2 PB&J sandwiches, sausage biscuit, bowl of Froot Loops, apple juice & milk!

FB Posts 10.19.10

Tuesday, October 19, 2010 4:01 PM
We have another MRI, x-ray, bloodwork & meeting with oncologist early in the morning. Caleb can't eat or drink after 1:30am. Please pray he doesn't have much appetite until after the appointment is over.

FB Posts 10.18.10

Monday, October 18, 2010 9:16 PM
We have another MRI, x-ray, bloodwork & meeting with oncologist early in the morning. Caleb can't eat or drink after 1:30am. Please pray he doesn't have much appetite until after the appointment is over. 

FB Posts 10.17.10

Sunday, October 17, 2010 8:43PM

From Richard:  Caleb was wanting me to be with him outside church today. He was wanting to eat his donuts. Caleb looked over and saw Amie with both of her youngest trying to pick them up. Caleb says, "Daddy, will you go help her out? I will be okay here."

FB Posts 10.16.10

Saturday, October 16, 2010 8:00 AM

First day in a week with no doctors, no tests, no shots. Just medicine today. Caleb's still doing well taking it. Fusses a little, but not like in the beginning. He's battling headaches lately, but he keeps on going. 

FB Posts 10.15.10

Friday, October 15, 2010 6:23 AM

Leaving for next procedure. Back in a few hours.  

FB Posts 10.14.10

Thursday, October 14, 2010 1:05 AM
Caleb woke up in a little pain from his procedure yesterday, but didn't want to take anything because he was afraid it would keep him from being able to go home. I reassured him he could take it & we could still leave. He asked to play Star Wars. By the time we got it set up, he says, "Star Wars, Internet" 3 times & fell asleep again! Too cute!!

FB Posts 10.13.10

Wednesday, October 13, 2010 4:00 AM
We've been awake since 3:10. Caleb woke up saying, "Mom, they stuck this in me AGAIN!" His IV had to be reconnected at midnight in preparation for his procedure this morning around 7:30. His hand is very sore. Thankfully, he'll be able to have the IV removed from his hand after this procedure. Really need more sleep now. More later.‎

FB Posts 10.12.10

Tuesday, October 12, 2010 2:24 AM
‎ I'm awake watching Caleb sleep. We are focusing on the positive in all this. We've been hearing sermons for a couple months on HOPE. I believe God was preparing us for what was to come.

FB Posts 10.11.10

Monday, October 11, 2010 12:42 AM

Thank you so much to everyone for your outpouring of love, prayer & support. We are so overwhelmed. Fortunately, Caleb doesn't understand what's going on at this point. We pray for God's strength, peace & wisdom in all we do. We know He is in control & this will be for His glory. The reports we received so far are not encouraging, but we will not give up. We choose to believe the report of the Lord, which says that Caleb is healed and whole. 

Worst Day of Our Lives

Sunday, October 10, 2010 12:04 PM
We're at the ER with Caleb. Don't know yet what's wrong. His right side is not functioning properly. CT scan done, more tests to run. Please pray we find out what's going on quickly & that it's not serious.