I'm awake watching Caleb sleep. We are focusing on the positive in all this. We've been hearing sermons for a couple months on HOPE. I believe God was preparing us for what was to come.
I also believe His timing is perfect because only 24 kids are being accepted into this clinical study & they want Caleb to be a part of it. That tells me that God already prepared the way for Caleb's healing to take place & help other children at the same time so He will be glorified in it all, which is our hope & desire.
I think right now we're leaning towards giving him the best possible chance of survival and the study won't have worse results than the standard.
BTW, I just want to say thank you to everyone who is praying for us. If I'm not able to comment back, please know that I am reading all comments. Feel free to repost any of my updates to your friends/family as well. I believe in the power of prayer and am uplifted knowing people around the world are praying for us in the midst of this trial.
Tuesday, October 12, 2010 9:30 AM
CALEB'S FINALLY CLEARED FOR SOLID FOOD!!!!!!! He's asking for a cheeseburger so as soon as the orders from the doctor go through, we're ordering a cheeseburger. He is going to be one very happy camper soon!
Tuesday, October 12, 2010 11:45 AM
Since being cleared for solid food, Caleb's had: a pudding, 8 cookies, crackers, snack bar, 1/2 cheeseburger, 1/2 order of fries, 1/2 bowl of fruit, 1/2 carton of milk, 2 apple juice boxes & a piece of gum. He's now napping with a full tummy. The only reason he didn't eat the full cheeseburger & fries is because it was a HUGE burger -- adult sized. I couldn't even have eaten all of it.
Tuesday, October 12, 2010 10:40 PM
Sorry for the long delay in update. Been a very busy day. Check comments for more details cause it won't all fit here! Meetings with physical therapy, occupational therapy, social workers, child life specialist, oncologists, surgeons, etc. Caleb's still eating/drinking well. He wants to go home more than anything. He's supposed to have a procedure done tomorrow morning to place a port (central IV line) into his chest. When we start treatment, he'll have to be sedated each time because of his age. If all goes well, there is a chance we may be discharged tomorrow and start everything as out-patient.
Thanks so much for all your prayers. I feel very peaceful in the midst of this storm & I know it's because of your prayers.
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